Tuesday, September 25, 2007

I had to use the "C Card"

I just have to tell this story because I haven't really told a story in a while.  The "C card" is what my family and I call it when I use my cancer to get what I want or to make a point.  It really is quite powerful, and honestly I don't use it often.  My sister Andrea has said that she would use it a lot more if she were me.  As a matter of fact, she has used my "C card" to get what she wants once or twice in the past.  Oh well, I'm here to help.  Really, I'm not making light of this and I hope those who know me, know that I never would.

So on with the story.  I was out at a party a couple of nights ago at restaurant where we were seated outside.  A man eating a few tables away was smoking a big cigar as well as a member of our group.  The man sitting across from us complained to the waiter that even though we are outside this is still a restaurant and by law no one should be smoking around people who are eating.  Besides that, his wife gets sick from smelling cigar smoke.  The waiter got the owner who made light of it.  Then a man who was sitting one chair away from me said that they should lighten up because he never smoked but never minded people smoking around him.  He said that one could breath second hand smoke their whole life and never get cancer.  With that, the restaurant owner offered this man a cigar and even though he was not a smoker, he said yes he would like one!

That was the last straw.  I turned to Steve and just said, "Can I use the card?"  He said, "Go ahead."  I could see that the couple was very upset and frankly, I had been getting very congested from the smoke that was already in the air-I did not need this man to light up next to me!  I excused myself for butting in and explained to the man that I am a cancer survivor.  I told him that I had lymphoma in my lungs and that my lungs were left scarred from my cancer and it's treatment, and that I did not appreciate people smoking around me especially where smoking is not allowed.  He apologized and I further explained that we may not be able to tell how much second hand smoke will cause a person cancer and that you don't know the person's situation who sitting next to you.

Needless to say, he did not light up.  I smiled at my new friends across the table and said, "It works every time." 

Friday, September 14, 2007

Light the Night Walk-2007

Wow!  I can't believe it's that time of year again.  And I really can't believe that this is my 3rd year walking in the Light the Night Walk.  I am participating in the walk on October 6th and I will be celebrating being post treatment 2 years! 

My cousin Joe emailed me when he donated to this walk saying that I am a "walking miracle."  It really is a miracle that I am here and doing so well.  I do not forget that if I had this disease only a few decades earlier, I would have not survived given how advanced it was when I was diagnosed.  And that is why two years later I still do not take my cure for granted and continue to walk so that others may be a "walking miracle" some day.

Here is my donation page if anyone is interested in making a donation:

http://www.active.com/donate/ltnWestfi/Jackiepie07

The walk is Saturday, October 6th at Brookdale Park.  Registration begins at 5:30.  Come and join Team Jackiepie!!

Friday, July 13, 2007

another great ct scan

I had another ct scan and visit with my lymphoma doctor at mskkc on Tuesday.  I did very well.  Everything is stable and some scar tissue in my chest actually shrunk a bit-yay!  My counts are basically the same-slightly low wbc and platelets, everything else is normal.  My doctor says it's my "new normal."  I was seeing him every three months for so long because he was watching my low blood counts.  Now he says that I will see him less, every six months with a ct scan each time.  So that is great!
 
Now I am feeling totally great.  I have no more pain at all and I have tons of energy.  It's the new and improved me-ha-ha.  So now I can enjoy my summer off and have fun.  We have no vacation plans yet, but our house needs a no vacancy sign.  My cousin Antonio is coming from Italy for three months to stay with us and during that time Steve's parents will be up from Florida for a week.  But I am happy to have the company.
 
That's all the news for right now.

Tuesday, April 10, 2007

How I am doing-1 1/2 years post treatment

Today was my 3 month check up with my lymphoma doctor.  No scans, just blood work and a check up.  All is well.  I was sick with colds a good part of February and March so it was a relief that my doctor found me well and that my lungs sound clear.  I was also very happy because my blood counts were pretty good.  My hemoglobin was normal.  My white blood count was actually in the low normal range for the first time in a very long time.  The platelets are still low so no playing with knives for me! 
Back in February I saw the endocrinologist for my thyroid.  All is well with that too.
My next CT scan is in July and in August I will have an ultrasound of my neck to check the left side of the thyroid that remains.
I am now a year and a half post treatment. 
I am really happy with my results and progress.  About a month ago I began to feel relief from some post chemo symptoms.  All this time, I had constant joint pain all over my body and now it is pretty much gone.  It only remains in my hands and I usually only feel it when I wake up.  You can't imagine what a relief that is!  And now I am sleeping much better which is probably due to the fact that I am not in so much pain anymore.  Yay!!  I am still suffering from chemo brain though-lol.
Thank you all for your love and prayers!

Sunday, April 8, 2007

Happy Easter

Easter is my favorite holiday.  It's a time of new beginnings and I love that.  Easter blessing to you all!

Friday, February 16, 2007

Click Out Cancer

I received this email from a friend today.  Someone that I went to grammar school with created this website to raise funds for cancer research.  How cool is that?  It just requires you to visit the website, it does not ask for donations.  Here is an explanation from the website:
 
Rather than asking friends for monetary donations or to buy raffles, chocolates, or wrapping paper; ClickOutCancer.com requires a simple click on the "Click Out Cancer" button below. NO monetary donation is required. Funds will be generated by Google ads, affiliate programs, and website sponsors whose ads appear throughout the website. 100% of all proceeds generated from this website will be donated at year's end to the American Cancer Society and the More Than Friends organization.
 
It's that simple.  So bookmark this page and visit it everyday!  And pass this on to everyone you know.
 

Sunday, January 14, 2007

Light the Night Brunch/Award




Yesterday, I attended a brunch to honor all who raised over $1,000 for the Leukemia & Lymphoma Society. It is a really nice event, but sad also. There were a couple of people that I met last year who are no longer with us. So, it is bittersweet to say the least. It certainly reminds us all of how important it is to continue to raise funds for research.




On a happy note, and much to my surprise, I won an award. I was the 5th highest individual fund raiser in Northern NJ! I was very happy and excited. Of course, it is thanks to my family and friends who helped me and were so generous.




So now I am really looking forward to next year. This lady who I met last year actually challenged me! She said next year she will beat me and I'm thinking-bring it on lady! Now I must exceed this year's amount.




Save the date: Next year's walk is October 6th in Brookdale Park. I hope Team Jackiepie continues to grow so mark your calendars and join us!